Living with a chronic illness 

Found this lovely article that I thought I would share. All credit to the author:
Living through your teens and your 20s can be a particularly difficult experience when you’re chronically ill. There are so many things that you want to be able to do and experience, but your body simply won’t cooperate. I know this only too well. My body and I have been in a constant struggle for supremacy for as long as I can remember.
I’ve written a lot about my experiences on my blog, and I’m still very much working things out. That being said I have found that in addition to working on myself, having people around you that really understand and support you is so incredibly important.
When you have illnesses that mean you don’t look sick, people generally disregard you and think that you’re at least making some of it up. I have spent a huge amount of time trying to justify myself to so many people. At the end of the day, this is counter-productive, and I’m seeing myself through the eyes of someone else’s ignorance. I know what is happening to my body, and I also know what I’m capable of, and I’m doing everything I can to heal.
So, today, I’d like to take the opportunity to share some quick things that millennials (ugh) living through their teens and twenties with chronic illnesses will know. I hope that this will serve to help people be more understanding and awareness of what they can do to support their friends and loved ones who fight every day for their health.
1) “But you don’t look sick” is kind of the worst thing you’ll hear all day
2) Sometimes the desire to feel ‘normal’ can be overwhelming
3) Learning to appreciate the small victories is a small victory in itself
4) Even though it comes from a place of love, overprotective friends and parents can leave you feeling like you’re still 12 years old
5) Finding employers who understand that you might have to disappear for periods of time while you recover, and will do everything they can to support you, is one of the best feelings ever
6) Cutting out negative people from your life helps you heal
7) You know your body better than anyone, even your doctors
8) The internet is a godsend
9) Spoon theory makes total sense
10) The realisation that maybe all those doctors you see aren’t actually helping as much as you thought is a frightening and enlightening experience all at the same time
11) Taking control of your life in the best way you can and trying to help yourself is always better than laying in bed feeling defeated
12) Self-sabotage, flair-ups and bad days are always going to happen, it’s how you deal with them and move forward that counts
13) Finding positive role models who have been through what you’re going through and can share their stories and tips really, really helps
14) You don’t need reminding that you are not your illness, but sometimes changing ingrained thinking patterns is hard
15) You know what’s really and truly important in life because you cut through the bullshit
16) You and your spoonie friends are some of the strongest people you know

6 thoughts on “Living with a chronic illness 

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